Thursday, August 19, 2010

Kardiac Kids Camp Mokule’ia 2010

October 8th – 10th

August 20th is the last day to get your spot.

What is Camp Mokule’ia?
Even though we were all disappointed at the lack of Camp Taylor this year we are not going to let it get us down. Why not have some fun at beautiful, laid back Camp Mokule’ia. Camp Mokule`ia is located on the beautiful, pristine North Shore of O`ahu, 40 miles northwest of Honolulu, at the foot of the Wai'anae Mountain Range and ocean front. http://www.visitcampmokuleia.com/

What will it cost?
We are asking for a minimum donation of $100.00 a family to help defray the cost. We are considering braking the cost up per night to $35.00 a day depending on RSVP’s.

What is included?
We will provide the following:
-Cabin lodging (22 people per cabin, linens not included. Please bring your own)

-Modest breakfast, lunch, and dinner (please bring your own snacks and extras)

-Activities include Beach walks, crab hunts, fishing, swimming, snorkeling, arts and crafts, talking story with other heart families, (we are also excepting more ideas)
-Good company - We are all look forward to getting together and talking story. We all have extraordinary heart children. Join other heart families, and have a chance to better understand where we have been, what we have been going through, and where we are going..

When sending your RSVP in please include the following
-The names of all the family members that will be attending
-The ages of your children
-Days you would like to attend and whether you will be staying the night

Please RSVP by August 20th
Contact -
-Nikki Christiansen
Email: nikki@knitec.com

Monday, August 16, 2010

The Impact of Congenital Heart Defects

Here is an Article about Congenital Heart Defects that I found interesting.


A normal heart has valves, arteries and chambers that carry the blood in a circulatory pattern: body-heart-lungs-heart-body. When all chambers and valves work correctly, the blood is pumped through the heart, to the lungs for oxygen, back the heart and out to the body for delivery of oxygen. When valves, chambers, arteries and veins are malformed, this circulation pattern can be impaired. Congenital heart defects are malformations that are present at birth. They may or may not have a disruptive effect on a person's circulatory system.
Congenital heart defects are structural problems with the heart present at birth. They result when a mishap occurs during heart development soon after conception and often before the mother is aware that she is pregnant. Defects range in severity from simple problems, such as "holes" between chambers of the heart, to very severe malformations, such as complete absence of one or more chambers or valves.

Having a congenital heart defect can also increase your risk of developing certain medical conditions.


Associated Conditions

Having a congenital heart defect can increase your risk of developing certain medical conditions.

-Pulmonary Hypertension
-Arrhythmias
-Infective Endocarditis
-Anticoagulation
-Congestive Heart Failure

Questions about Congenital Heart Defects

Q: Are all heart problems in children congenital??

No, but most are. There are generally three categories of possible childhood heart problems: structural defects, acquired damage and heart rhythm disturbances. These defects are usually - but not always - diagnosed early in life. Rarely, childhood heart problems are not congenital, but heart damage may occur during childhood due to infection. This type of heart disease is called acquired; examples include Kawasaki disease and rheumatic fever. Children also can be born with or develop heart rate problems such as slow, fast, or irregular heart beats, known as "arrhythmias".

Q: Who is at risk to have a child with a congenital heart defect??

Anyone can have a child with a congenital heart defect. Out of 1,000 births, nine babies will have some form of congenital heart disorder, most of which are mild. If you or other family members have already had a baby with a heart defect, your risk of having a baby with heart disease may be higher.

Q: Why do congenital heart defects occur?

Most of the time we do not know. Although the reason defects occur is presumed to be genetic, only a few genes have been discovered that have been linked to the presence of heart defects. Rarely the ingestion of some drugs and the occurrence of some infections during pregnancy can cause defects.

Q: How can I tell if my baby or child has a congenital heart defect?

Severe heart disease generally becomes evident during the first few months after birth. Some babies are blue or have very low blood pressure shortly after birth. Other defects cause breathing difficulties, feeding problems, or poor weight gain. Minor defects are most often diagnosed on a routine medical check up. Minor defects rarely cause symptoms. While most heart murmurs in children are normal, some may be due to defects.

Q: How well can people with congenital heart defects function?

Virtually all children with simple defects survive into adulthood. Although exercise capacity may be limited, most people lead normal or nearly normal lives. For more complex lesions, limitations are common. Some children with congenital heart disease have developmental delay or other learning difficulties.

Q:What is the social/financial impact of congenital heart defects??

Successful treatment requires highly specialized care. Severe congenital heart disease requires extensive financial resources both in and out of the hospital. Children with developmental delay also require community and school-based resources to achieve optimum functioning.

Q: What is the impact of congenital heart disease on families??

The presence of a serious congenital heart defect often results in an enormous emotional and financial strain on young families at a very vulnerable time. Patient/family education is an important part of successful coping.

Q: Where can I get additional information??

You can get additional information from the American Heart Association. You can reach them by calling 1-800-AHA-USA1 (1-800-242-8721) or at www.heart.org/children.

http://www.heart.org/HEARTORG/Conditions/CongenitalHeartDefects/TheImpactofCongenitalHeartDefects/The-Impact-of-Congenital-Heart-Defects_UCM_001218_Article.jsp

Sunday, August 15, 2010

Pizza Hut Fundraiser


Our Kardiac Kids Pizza Hut Fundraiser is upon us. This Tuesday lets get everyone to order a pizza in honor of our little ones. Here is a copy of our flyer. All you have to do is order a pizza from ANY Pizza Hut here on the islands, tell them when you call in that this is for a fundraiser, then when they drop off the pizza give them our flyer with your payment. Email Tina or Nikki if you need the flyer.

Heart Walk 2010




So this weekend was the Annual Heart Walk. What a day it was. So many people out to help support. It was so great to see the families that are so touched by the great things that the american heart association does. Kardiac kids had a booth set up and did meet one new family that has not heard of us. Thanks to everyone who helped make this a great event. Pics to come.